Epilepsy-associated stigma in Bolivia: a community-based study among the Guarani population: an International League Against Epilepsy/International Bureau for Epilepsy/World Health Organization Global Campaign Against Epilepsy Regional Project.

Elisa Bruno; Alessandro Bartoloni; Vito Sofia; Florentina Rafael; Donata Magnelli; Sandra Padilla; Graziella Quattrocchi; Filippo Bartalesi; Higinio Segundo; Mario Zappia; Pierre-Marie Preux; Alessandra Nicoletti

Epilepsy-associated stigma in Bolivia: a community-based study among the Guarani population: an International League Against Epilepsy/International Bureau for Epilepsy/World Health Organization Global Campaign Against Epilepsy Regional Project.

Elisa Bruno ¹ Alessandro Bartoloni Vito Sofia ¹ Florentina Rafael ² Donata Magnelli Sandra Padilla Graziella Quattrocchi ¹ Filippo Bartalesi Higinio Segundo Mario Zappia ¹ Pierre-Marie Preux ^{3, 4, 5} Alessandra Nicoletti ^{1, *}

* Auteur correspondant

1 Department of Neurosciences

2 NETEC - Neuroépidémiologie Tropicale et Comparée

3 NET - Neuroépidémiologie Tropicale

4 SIME - Service de l'Information Médicale et de l'Évaluation [CHU Limoges]

5 Laboratoire de Biostatistique et d'Informatique Médicale

Abstract : Epilepsy is associated with a significant burden of social stigma that appears to be influenced by psychosocial and cultural factors. Stigma has a negative effect on the management of people with epilepsy (PWE), representing one of the major factors that contribute to the burden of epilepsy. To assess stigma perception among the Guarani population, one hundred thirty-two people living in Guaraní communities in Bolivia were invited to complete the Stigma Scale of Epilepsy questionnaire. The main determinants of stigma identified were: the fear linked to loss of control, the feelings of sadness and pity toward PWE, the difficulties faced by PWE in the professional and relationship fields, the level of education and type of seizure. Our study pointed out that, in this population, PWE face difficulties in everyday life because of epilepsy-associated stigma and the results attest to the importance of promoting community-based educational programs aimed at reducing the stigmatization process.

Type de document :

Article dans une revue

Domaine :

Sciences du Vivant [q-bio] / Santé publique et épidémiologie

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https://hal-unilim.archives-ouvertes.fr/hal-00921506
Contributeur : Elisabeth Grelier <>
Soumis le : vendredi 20 décembre 2013 - 15:07:05
Dernière modification le : lundi 12 mars 2018 - 10:26:02

Epilepsy-associated stigma in Bolivia: a community-based study among the Guarani population: an International League Against Epilepsy/International Bureau for Epilepsy/World Health Organization Global Campaign Against Epilepsy Regional Project.

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Epilepsy-associated stigma in Bolivia: a community-based study among the Guarani population: an International League Against Epilepsy/International Bureau for Epilepsy/World Health Organization Global Campaign Against Epilepsy Regional Project.

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