Impact of epilepsy on children and parents in Gabon.

Abstract : Children with epilepsy and their parents face many social and psychological difficulties that remain insufficiently studied in sub-Saharan Africa. The aim here was to assess the quality of life of children with epilepsy and their parents. A community-based cross-sectional survey was conducted in two urban areas and four rural areas of Gabon. Children were screened through key informants, medical sources, and a door-to-door survey. They were clinically selected based on their medical history and a clinical exam conducted by the investigating physician. Electroencephalography had not been carried out because of a lack of material and financial resources. The quality of life of children and their parents was assessed by a structured interview of parents using a questionnaire. Of 317 suspected cases on screening, 83 children with epilepsy were identified. Their mean age was 11.9±4.4years. Twelve percent of the children had neurosensory abnormalities on clinical exam. Sixty-three percent of them attended school; factors associated with schooling were higher score on the sociability subscale, specialized medical advice, and antiepileptic drug treatment. Sociability difficulties, anxiety, cognitive impairment, and behavioral disorders were suspected in 39.8%, 45.8%, 49.4%, and 42.2% of children, respectively. A total of 48.2% of parents expressed a poor quality of life related to their children's illness. A higher score on the cognition subscale, urban residence, specialized medical advice, and a stable income in the household were predictive of poor parental quality of life. Epilepsy influences many aspects of a child's life and the life of the child's parents. Care should incorporate a cognitive assessment of the child and emphasize information for patients and their relatives.
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Article dans une revue
Epilepsy and Behavior, Elsevier, 2015, 44, pp.110-6
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Soumis le : mercredi 27 janvier 2016 - 10:49:43
Dernière modification le : mercredi 28 février 2018 - 17:04:02

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  • HAL Id : hal-01262765, version 1
  • PUBMED : 25678031

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Euloge Ibinga, Edgard Brice Ngoungou, Bertrand Olliac, Cocou Hubert Hounsossou, François Dalmay, et al.. Impact of epilepsy on children and parents in Gabon.. Epilepsy and Behavior, Elsevier, 2015, 44, pp.110-6. 〈hal-01262765〉

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