Impact of epilepsy on children and parents in Gabon.

Abstract : Children with epilepsy and their parents face many social and psychological difficulties that remain insufficiently studied in sub-Saharan Africa. The aim here was to assess the quality of life of children with epilepsy and their parents. A community-based cross-sectional survey was conducted in two urban areas and four rural areas of Gabon. Children were screened through key informants, medical sources, and a door-to-door survey. They were clinically selected based on their medical history and a clinical exam conducted by the investigating physician. Electroencephalography had not been carried out because of a lack of material and financial resources. The quality of life of children and their parents was assessed by a structured interview of parents using a questionnaire. Of 317 suspected cases on screening, 83 children with epilepsy were identified. Their mean age was 11.9±4.4years. Twelve percent of the children had neurosensory abnormalities on clinical exam. Sixty-three percent of them attended school; factors associated with schooling were higher score on the sociability subscale, specialized medical advice, and antiepileptic drug treatment. Sociability difficulties, anxiety, cognitive impairment, and behavioral disorders were suspected in 39.8%, 45.8%, 49.4%, and 42.2% of children, respectively. A total of 48.2% of parents expressed a poor quality of life related to their children's illness. A higher score on the cognition subscale, urban residence, specialized medical advice, and a stable income in the household were predictive of poor parental quality of life. Epilepsy influences many aspects of a child's life and the life of the child's parents. Care should incorporate a cognitive assessment of the child and emphasize information for patients and their relatives.
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Contributeur : Elisabeth Grelier <>
Soumis le : mercredi 27 janvier 2016 - 10:49:43
Dernière modification le : mercredi 28 février 2018 - 17:04:02


  • HAL Id : hal-01262765, version 1
  • PUBMED : 25678031



Euloge Ibinga, Edgard Brice Ngoungou, Bertrand Olliac, Cocou Hubert Hounsossou, François Dalmay, et al.. Impact of epilepsy on children and parents in Gabon.. Epilepsy and Behavior, Elsevier, 2015, 44, pp.110-6. ⟨hal-01262765⟩



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